Must Read: E-Patient Dave’s Book on Patient Engagement

Posted Thursday, July 10, 2014 in Customer Culture by Patricia Seybold

My favorite business model—and the one I believe is gradually becoming more pervasive—is a customer ecosystem. It’s a business network of suppliers, partners, regulators, who are all aligned to help customers meet their outcomes in the easiest, most cost effective manner. It’s not top down. It’s not bottom up. It’s inside out or outside in. It starts with the customers, with what they care about, with what they want to get done, at the core. All of the players in the ecosystem align to help those customers reach their desired outcomes with the most grace and ease.

Let Patients Help! Book coverOur healthcare industry is a far cry from being a true customer ecosystem. Today, particularly in the U.S., healthcare is a field of land mines that patients and their families have to detect, dodge, and jump over in order to get and stay healthy.

Yet, all over the country, and around the world, patients and their families are taking more control over their own health. They are demanding to see their medical records and to keep them accurate. They are doing their own research online about conditions and treatments. And, most of all, they are banding together in online communities to support each another, and to share their experiences and their learnings with one another, in order to help the next patient/family with a particular condition have a better outcome and experience. Enlightened professionals--doctors, clinicians, researchers, hospital executives and staff—welcome this patient engagement. They recognize that it is inevitable. They understand that more empowered, engaged, equipped, and enabled, patients—e-patients—receive higher quality medicine, get better treatment, and achieve better outcomes.

e-Patient Dave, Dave deBronkart, is a cancer survivor because his doctor encouraged him to become an e-Patient (Dave would have done it anyway, but Dr. Danny Sands pointed him in the right directions). Since Dave’s miraculous recovery from terminal kidney cancer, Dave has dedicated his life to being a patient activist and advocate and transforming the health and treatment industry. Dave advocates participatory medicine, patient engagement, and shared decision-making. He sees an industry that is in the midst of major transformation, in which patients, armed with their data, and their real-time health information, and their communities of experts, will work together with medical professionals to blow up and reshape the industry. What will be the result? A patient, customer, family ecosystem with patients and their health outcomes at the core.

Ten Steps that May Save (or Improve) Your Life
Prepare Now to Engage as a Patient and/or Advocate for Someone You Love
By Patricia B. Seybold, CEO, The Patricia Seybold Group, July 10, 2014


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